Comm Convo

August 2026 Comm Convo: Rethinking What We Ask of Patients

Wednesday, August 26th

1-2 p.m. ET / 10-11 a.m. PT / 6-7 p.m. BST

Zoom

Communicators regularly invite patients to share personal experiences for corporate websites, presentations, employee events, campaigns, focus groups, and advisory boards. These requests are often well intentioned, but they can still rely on an unspoken assumption that patients should be willing to contribute because the organization is working on their disease. As patients and advocates increasingly expect fair compensation, meaningful influence, and a clearer answer to “what’s in it for me right now?”, communicators need to look beyond the value a patient’s participation creates for the company and consider the terms of the exchange itself. This Comm Convo will examine how communicators can challenge one-sided asks, advocate for more equitable participation with internal partners and clients, and recognize when patient involvement should be shaped in partnership with—or led by—patient advocacy experts. It will establish a shared foundation for forthcoming T2B Patient Advocacy & Engagement Roundtable programming, which will go deeper into the practices, policies, and models that support meaningful engagement.

Why attend

  • Recognize when a well-intentioned request treats a patient primarily as content, validation, or inspiration rather than a collaborator.
  • Evaluate the immediate value patients receive from participating, including compensation, clarity, influence, and follow-through, and how communicators can make the case internally for budgets and timelines that support fair exchange.
  • Develop a stronger framework for patient invitations by asking more thoughtful questions, including what decisions patients can shape and how their input will be used.
  • Cultivate more deliberate partnerships with patient advocacy colleagues, including a clearer understanding of when communications should lead, support, or step back.

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Meet our speakers

Kathryn Brown

Kathryn Brown

SVP, Chief Communications & Marketing Officer

Cystic Fibrosis Foundation

Jennifer Mefford

Jennifer Mefford

Chief Partnerships Officer

Pulmonary Fibrosis Foundation

Louise Vetter

Louise Vetter

President & CEO

Lupus Foundation of America

Moderator
Erin Murphy

Erin Murphy

Global Strategy & Partnerships and Communications

Alagille Syndrome Alliance